Muscular Dystrophy UK

Information for young people on neuromuscular conditions

February 3, 2017

Living with a neuromuscular condition can be a steep learning curve, but Muscular Dystrophy UK is there to help.

Muscular Dystrophy UK is the charity for the 70,000 people living with muscle-wasting conditions in the UK.  They bring together people affected by more than 60 rare and very rare progressive muscle-weakening and wasting conditions.

Muscle-wasting conditions are very rare, affecting just over one in every 1,000 people. As a result, some health professionals may never come across anyone with a muscle-wasting condition and may not know much about them. But Muscular Dystrophy UK does.

They work with young people across the country to campaign for your rights and to improve the quality of care you can expect to receive. Every day counts and they are there to make sure that you have all the opportunities and information you need to plan for your future.

All of their information is free and they are there to support you – no problem is too big or too small, if you’re not sure about something get in touch by calling or emailing their helpline.



Trailblazers is a national network of 700 young disabled people and their supporters, and is part of Muscular Dystrophy UK.

They campaign for change, provide guidance, and are experts in what life is like for young disabled people. They are passionately committed to challenging the barriers in society that stop them from living full and independent lives.

For more information please go to Muscular Dystrophy UK

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